Over 6000 rare diseases are characterised by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient suffering from the same disease. Relatively common symptoms can hide underlying rare diseases leading to misdiagnosis and delaying treatment. Quintessentially disabling, the patients quality of life is affected by the lack or loss of autonomy due to the chronic, progressive, degenerative, and frequently life-threatening aspects of the disease. The fact that there are often no existing effective cures adds to the high level of pain and suffering endured by patients and their families. Rare Disease Day is a great example of how progress continues to be made, with events being held worldwide each year. Beginning in 2008, when events took place in just 18 countries, Rare Disease Day has taken place every year since, with events being held in 94 countries in 2017. - www.rarediseaseday.orgFill those baskets today Lash Lovers, and know that you are helping those suffering from rare diseases...
Thank you to all for your thoughts, prayers and support today.
BPAN Warriors is lovingly maintained and supported by families, friends and community members who share a common mission:
"To actively support, facilitate and expedite therapeutic initiatives and scientific research that will enhance the quality of life for individuals living with BPAN by mobilizing and empowering BPAN Warrior families worldwide, through access to community resources, information and most importantly, CONNECTION to our BPAN Warrior Tribe."
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